Madison Holland Foundation

Clinician attitudes toward patients are associated with variability in the quality of heath care…Negative attitudes toward adults with sickle cell disease have been identified as an important barrier to the receipt of appropriate pain management for this patient population. Carlton Haywood, Jr PhD et al. A video-intervention to improve clinician attitudes toward patients with sickle cell disease: [...]

If you enjoy sex but are experiencing some kind of pain, find excuses to have more sex. Sex takes your mind off your troubles. It’s not motrin or morphine but its certainly more fun. Let me clarify, there’s nothing fun about sickle cell pain or any kind of pain for that matter, but who wouldn’t [...]

Most people think sickle cell is an African American disease but it’s not. The disease doesn’t know what that means. It doesn’t care that you don’t know people of middle eastern  and Latin descent also carry the trait. The disease goes where it is allowed to go. For example, if I marry a man who [...]

It feels good!!! When I started out, I have to admit I was a bit timid. It took me two weeks to make the announcement to my family and friends that I had started to blog…again. Over this three month period, I have gone through three transformations: Initially, it was all about Madi and sickle cell [...]

This just in….Another student athlete has died. Robert Garza, 16, died during an AAU basketball game Saturday in South Texas. A while back sports officials wanted to make testing for sickle cell disease a requirement for football players due the deaths of the football players in Florida and Ohio. Players and parents were against it [...]

When a normal person goes to bed, their kidneys slow down. The average person can sleep through the night without getting up to go pee because you’re not making much pee. The person with sickle cell disease never stops making pee. They have to make more frequent trips to the rest room and can rarely [...]

I am not an expert in the area of medicine. I write on the Madison Holland Foundation blog from a personal perspective, this is what I know and have seen either here at home, in the doctor’s office or on the web. I do this to get attention for sickle cell and to hopefully get [...]

Blood deprivation to the bone eventually kills the bone tissue around it. This condition is typical for the sickle cell SC patient over 35. There’s nothing you can do to prevent it, but like everything else, there are treatments. Drugs of course help manage the pain and when that doesn’t work, there’s always hip replacement [...]